When Doctors Hurt Instead of Heal

when doctors hurt
Far too often grappling with a chronic illness is a fight not only for your health but also for your dignity. Many times the medical community can unintentionally compound the pain of those suffering by minimizing their experience or even invalidating them entirely. It can take years or even decades for some patients to get an answer to what is plaguing them, and for some the diagnosis never comes at all. Here are some actual responses I have encountered from doctors in my 15 year journey to getting my diagnosis of Lyme disease.
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Mama Has Lyme

mama has lyme“Does your child have any special challenges I should be aware of?”

Two tiny blank lines staring at me, enough for maybe three sentences if I wrote very narrowly. Yes, Aidan is on the autism spectrum, and has a variety of specific learning challenges in the classroom, but there was already an IEP file explaining these things at length. There wasn’t space here to revisit those again.

“Does your child have any special challenges I should be aware of?”

Two tiny blank lines, waiting for me to explain. My face was beginning to flush and I could feel the fog in my brain growing thicker as I grew more and more flustered trying to turn thoughts into words on this cheery yellow paper. The neuropathy in my hands was making it harder to grip the pen and I could see the words on the page start to shift out of focus the longer I tried keep them in view.

“Does your child have any special challenges I should be aware of?”

I scribbled out lightly, “Yes, I have Lyme disease.” [Read more…]

When God Pushes Pause

 

The blog has once again been eerily quiet.

There was such a year of build up to creating this site, with God opening doors I could have never ever dreamed and with opportunities coming together in the most providential of ways. It was amazing to experience how when you are willing to simply say yes to whatever and wherever He leads, the journey is beyond anything you can ask or imagine. It was all of the truths of “immeasurably more” coming to life and exploding off the page. It was magical.

And then right when the opportunities were most abundant?

HE PUSHED PAUSE.

If you follow my social media channels you will have likely seen the reason behind the recent silence on the blog. After 15 years of continuing health issues a surprising twist has come to light. Countless misdiagnoses and failed treatments and incredulous shrugs from doctors who couldn’t agree on a name for the symptoms that seemed to be multiplying more rapidly than ever all culminated in a unexpected identity for my captor:

LYME DISEASE

With the key finally in hand to the mystery of my crippling illnesses, we set out to finally banish my issues once and for all, only to discover we had been dealt a double edge sword. This particular diagnosis, it would seem, is only a beginning to a very long road indeed. Treatments are difficult and uncertain. Doctors who are knowledgable of the condition are few and far between. Insurance companies all but refuse to cover any of it. The diagnosis isn’t so much an ending to this struggle as the beginning of a new one.

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