With the start of fall and children heading back to school, my Instagram feed is once again filled with snaps of book covers laid next to morning mugs of coffee, captioned with inspirational quotes taken from within their pages. Women are getting back into their morning quiet time routine, moms’ ministries are announcing their new fall event schedule, and Bible Study groups are starting up again after their summer break. With the amazing year that Christian publishing has had, there’s certainly no shortage of quality books to choose from. My own Amazon purchase history certainly suggests it’s been a gangbuster year for female authors of faith. But here’s the thing friends: those inspiring devotional books we all love? Most of them actually aren’t Bible studies, and it’s important we carefully recognize the difference. [Read more…]
Far too often grappling with a chronic illness is a fight not only for your health but also for your dignity. Many times the medical community can unintentionally compound the pain of those suffering by minimizing their experience or even invalidating them entirely. It can take years or even decades for some patients to get an answer to what is plaguing them, and for some the diagnosis never comes at all. Here are some actual responses I have encountered from doctors in my 15 year journey to getting my diagnosis of Lyme disease. [Read more…]
Since I often blog and speak about my chronic illnesses, I occasionally find myself on the receiving end of an email that sounds something like this, “Hey Stephanie, my friend so-and-so just found out they have insert diagnosis here. I really want to send them a care package or a gift to show them I care. Could you give me some kind of idea of what they would want?” In fact, I get these sorts of messages so often I’ve decided to dedicate an entire blog post to answering this, so I can point people towards this list in the future.
It’s important to remember: whether your friend or family member is facing a life long chronic ailment, is spending the next few months enduring chemo or radiation, is facing a long bedrest for pregnancy complications, or is learning to cope with a new physical handicap – every case, and every person, will be different. Not every gift is appropriate in every circumstance or personality, so above all, don’t be afraid to ask. But in the end, I know first hand how hard it can be to ask for help even when it’s offered, so hopefully this list will offer some great ideas when you have that friend says “it’s ok… we’re managing” (Yeah, guilty as charged on that one!)
Caring Crate Subscription Box ($39.95 per month, or discount if ordering multiple months)
Subscription boxes are all the rage right now, and this incredible company decided to create a box specifically to minister to the needs of the chronically ill. Every box has beautiful self care products for the body and mind, each hand chosen with those suffering from long term illnesses in mind. They are the perfect gift for somebody going through cancer treatments since you can arrange a 3 or even 6 months subscription so that when the initial wave of cards and calls start to taper off, they are still receiving beautiful reminders each month that someone is thinking of them.
Spoon Necklace ($14.99)
Members in the chronic illness community have adopted the spoon as one our most important symbols, often referring to ourselves as “spoonies.” The inspiration behind this comes from an incredible post called The Spoon Theory, that you can read all about here. A spoon necklace is a touching way to tell your friend that you understand the choices she faces each day with managing her “spoons.” I suggest adding a thoughtful note to let them know you always want them to have an extra spoon for those especially tough days.
“Does your child have any special challenges I should be aware of?”
Two tiny blank lines staring at me, enough for maybe three sentences if I wrote very narrowly. Yes, Aidan is on the autism spectrum, and has a variety of specific learning challenges in the classroom, but there was already an IEP file explaining these things at length. There wasn’t space here to revisit those again.
“Does your child have any special challenges I should be aware of?”
Two tiny blank lines, waiting for me to explain. My face was beginning to flush and I could feel the fog in my brain growing thicker as I grew more and more flustered trying to turn thoughts into words on this cheery yellow paper. The neuropathy in my hands was making it harder to grip the pen and I could see the words on the page start to shift out of focus the longer I tried keep them in view.
“Does your child have any special challenges I should be aware of?”
I scribbled out lightly, “Yes, I have Lyme disease.” [Read more…]
When the first grey fall-ish day descends upon Oregon, or even the slightest hint of rain can be smelled on the pavement, my husbands eyes light up like a kid at Christmas. “Is it time for soup?”
This soup is quite possibly the most requested item of anything I cook. It’s filling, hits that perfect comfort spot when the cool rainy weather comes to stay, and the recipe is easily doubled (once i even tripled it across two large pots) to serve a large group. This is definitely what we would call a meal soup: its far to hearty to be served as an appetizer course to a regular meal. Just make a side of garlic bread, perfect for scraping every last drop from the bowl, and this soup is a meal in and of itself.
Finding your niche. Define your niche. Know your niche.
Niche is hands down the official buzzword of the blogosphere. What it mean? Essentially, the number one piece of blogging advice given at conferences, classes, and all over Pinterest boils down to this: find a specifically defined and branded area of the internet where you can establish yourself as an expert, and then stay in your lane. If you blog about recipes? Don’t post about home decor. If you’re a graphic designer? Don’t talk about your parenting. Pick an area of expertise, and then streamline your posts to stay within your sphere so that you have a clearly defined audience and an established brand.
So what’s my niche here at The Joy Parade?
I don’t have one.
When I started this blog, I hired an amazing designer who specialized in branding. I created a Pinterest board while working with her to brainstorm what I wanted my branding to communicate. Sure, some of that work is about color palettes and graphics and such, but much of it is defining how you want to make people feel. It’s imagining what your readers will experience when they go to your website, scroll through your Instagram, or otherwise engage with your brand online.
If you’ve ever clicked on the Meet Stephanie page, you may have seen this verse: “So being affectionately desirous of you, we were ready to share with you not only the gospel of God but also our own selves, because you had become very dear to us.” The verse serves as a manifesto of sorts for my purpose behind the Joy Parade. It’s a place where I get to share myself with my readers in an authentic way, letting each and every one of you into my story to see what God is teaching me and how He’s showing Himself to our little family. It’s an extension of who I am – spilled out to take form in these words and images, and sent lovingly outward to travel the web and onto the screens of whoever God would have them for.
Each summer I host a dinner for 12 in my backyard. Months of planning go into the event: theme, decor, menu, no detail is overlooked. I figure if we can invest so much time and effort into celebrating events like baby showers, engagement dinners, or birthday parties, why not take one night a year to celebrate the people we appreciate simply for the role they play in making our lives more rich and full. Why not celebrate community itself?
In selecting the guest list, which varies each year, I deliberately try to bring together a group of ladies who vary in social circles. In fact, many of the guests share only one thing in common when the night begins: they know me. A guest of this years event summed it up perfectly when she posted a photo on social media with the caption, “We ate appetizers with strangers and dessert with friends.” Sure, there’s always a little initial awkwardness as people get to know each other, but by the time the sun had set and the table was lit by the string lights overhead? The conversation was rich, the connections ran deep, and the authenticity with which these women spoke and shared was vulnerable and brave.
This year I used a floral theme, inspired by my desire to create a floral table runner to feature as the centerpiece of my tablescape. I waited until Michaels had a great coupon to combine with the clearancing of their spring seasonal decor to make room for summer. I grabbed some mixed bouquets from the clearance section that caught my eye, trying to keep to a believable color palette to better imitate the look of fresh blooms, and then supplemented with some greenery and single stems from the floral department. When I got home I disassembled everything and placed them all in piles so I could see all of the varying styles I had to work with. 90 minutes later, after placing each bloom individually on the burlap open-weave ribbon I was using as a base, I had a beautiful faux floral table runner that set the tone for whole evening.
The 2 sets of china were thrifted at low cost, the glassware was from my own collection but had also been thrifted, and the beautiful gold flatware was actually PLASTIC! Can you believe it? You never would have known until you picked it up. Thanks to some Amazon sleuthing I was able to invest in a very low cost grey table cloth and white linen napkins that are sure to get future use. One of my favorite finds those was probably a set of beautiful flickering led taper candles, so we didn’t have to worry about candles blowing out in the wind. (The set I purchased is no longer available, but was very similar to this set, which actually includes a remote as well.) The beautiful menu cards were designed by the talented Freshmint Paperie on Etsy, and I simply printed them on cardstock at our local copyshop and cut them to size. Yes, there was some cost to the event as not all of the items came from my existing collection, but one of the benefits to planning all year is that you can space out the costs, as well as use the time to search for the best deals. In the end, this is one of the ways I give back to the women in my life who have blessed me over the past year, so the cost is something my husband and I consider a worthwhile investment into the people we care about most.
Here are some photos from this years event:
With Jack being three, we’ve begun to take on a little bit of homeschool preschool. We’re not using a strict curriculum or even a set schedule, it’s mostly just following his interests and his lead and getting him comfortable with school-like activities, pre-literacy skills, shapes, numbers, etc.
Today’s activity was a real hit! We had purchased a jar of alphabet stamps from the fun in a jar collection by Recollection (available at Michaels) earlier this summer. I’m unsure if this item is still available, but I found this gorgeous option on Amazon for only $7.96 with free shipping for Prime members! I’m tempted to get one of these for the boys since it has both upper AND lower case options, as well as numbers and some punctuation as well.
Jack enjoyed spelling out his name and Aidan’s with the stamps, as well as copying words from his Melissa and Doug See & Spell puzzle set by stamping each letter on his paper. It was great to see how comfortable he was getting with the idea of sounding out letters phonetically into words without the frustration of needing to write each individual letter.
Some quick and easy ideas for incorporating alphabet stamps into your own homeschool routine or letter play:
A sweet friend of mine took to Facebook to share the news of a new and difficult diagnosis she was trying to process. She was grappling with news of a condition that will be a life long struggle with pain and disability, and she was turning to her friends online for some much needed support. A few comments down, it happened:
“Don’t speak that over you. You do not have *diagnosis*…I rebuke that in the Name of Jesus! God wants you well. Speak healing over yourself.”
Just a day earlier a well meaning connection had sent me a private message on Facebook, suggesting I should listen to a sermon titled that exact same sentiment: God Wants You Well. The sermon description included the lines “[Religion] even tries to make us believe that sickness is a blessing. That’s just not true. God wants you well.” Seems like a pretty positive message right? I mean, Jesus DID go around healing the blind and asking the lame to walk, so clearly He doesn’t want anyone to be sick…right? He only wants blessings for His followers: all the good and perfect gifts from the Father, and everything else? Well those are the attacks of Satan – obviously.
Friends, I hate to be the bearer of bad news, but as great as that sounds? It’s totally not Biblical – not even a little bit.
Take a seat, grab your coffee and your Bible if its handy, and lets dig in together to see what God REALLY says about suffering. I’m taking on 7 key points where we can compare the teachings of the prosperity gospel side by side with God’s word, and see just how much they don’t sync up.
The Prosperity Gospel says: Rebuke Suffering
The Bible Says: EXPECT Suffering
1 Peter 4:12
Beloved, do not be surprised at the fiery trial when it comes upon you to test you, as thought something strange were happening to you.
1 Thessalonians 3:3
…that no one be moved by these afflictions. For you yourselves know that we are destined for this.
1 Peter 4:19
Therefore, let those who suffer according to God’s will entrust their souls to a faithful Creator while doing good
1 Peter 2:21
For to this you have been called, because Christ also suffered for you, leaving you an example, so that you might follow in His steps
The New Testament is absolutely littered with references to suffering, especially if you dig in to the writings of Paul. (There’s a guy who did his fair share of suffering. )We’re reminded time and time again of the truth that suffering is to be expected for followers of Christ. When Jesus told us to pick up our cross to follow Him? He was preparing us for the reality that the Christian walk would in no way guarantee us “health, wealth, and prosperity.” Quite the opposite. Paul tells us in Thessalonians that we are destined for suffering, choosing a word that communicates the idea of the very purpose for which something was created – like a salt shaker is made to hold salt. As appealing as it is to believe that a life following Christ is one where we leave our troubles behind us, the truth of Gods word sheds light on a very different reality.
The blog has once again been eerily quiet.
There was such a year of build up to creating this site, with God opening doors I could have never ever dreamed and with opportunities coming together in the most providential of ways. It was amazing to experience how when you are willing to simply say yes to whatever and wherever He leads, the journey is beyond anything you can ask or imagine. It was all of the truths of “immeasurably more” coming to life and exploding off the page. It was magical.
And then right when the opportunities were most abundant?
HE PUSHED PAUSE.
If you follow my social media channels you will have likely seen the reason behind the recent silence on the blog. After 15 years of continuing health issues a surprising twist has come to light. Countless misdiagnoses and failed treatments and incredulous shrugs from doctors who couldn’t agree on a name for the symptoms that seemed to be multiplying more rapidly than ever all culminated in a unexpected identity for my captor:
With the key finally in hand to the mystery of my crippling illnesses, we set out to finally banish my issues once and for all, only to discover we had been dealt a double edge sword. This particular diagnosis, it would seem, is only a beginning to a very long road indeed. Treatments are difficult and uncertain. Doctors who are knowledgable of the condition are few and far between. Insurance companies all but refuse to cover any of it. The diagnosis isn’t so much an ending to this struggle as the beginning of a new one.